
Edition "D"
Depression - I really wish I could say that this isn't part of my life right now, but it is. I have good days, and I have bad days. When those advertisements on TV come on, describing what "depression" is, and you should take this pill or that pill ... I have to agree. There are days that I get up, ready to go, to do something. But, since I am out of the workforce now, that isn't an option. David does the laundry, so I fold it. But how long does that take? I should be in blog heaven -- blogging my little heart out, working on my autobiography, doing numerous memes each day, as well as a regular blog entry each day. I should be out there visiting, leaving comments. I have permission to blog all day. But, as you scroll down through the entries, I definately have not wound myself up and landed in blogland.
I'm pretty sure one of the pills I'm taking IS for the depression. I had one doctor that followed me, and was asking me every day how I was doing. Just the questions he asked led me to believe he was more interested in my emtional state than my physical state. He asked if it would be OK to prescribe a pill for depression, that he knew I was going through a lot -- and this was before everything else hit. I take so many pills, I'm not 100% sure what all of them are for, but I'm pretty sure one of them is for depression.
I guess the good side is that its not an everyday thing. There are days that I really do feel good, and try to make the effort to do more than I did the day before. I think one of the things that gets me down is the pain. It just won't go away. And I know that I have these appointments laying ahead of me which is going to hurt every more. If this one spot didn't hurt, I think I would have really good days most of the time. I'm such a wimp.
Denial - This really hit home when a box of my personal effects from the church office was brought home. I've been living in this world that I will be returning back to my "normal" life shortly, even though we have talked about it, and I know I'm not because of the "disability" we are trying to get on. I know this intelluctually, and accept it as such. But emotionally, I know I am in denial, and it hurts to know that not working at a job for the rest of my life could be what life has dealt me, and emotionally, I just can't accept it, even though because of the overwhelming medical bills that we have, we have to do what we have to do.
David - He is my husband of 25, almost 26 years. When we married, we became the instant parents of 4 children. He had 2 girls from a previous marriage, I have 2 from a previous marriage. I won't say our marriage was easy going and trouble free. We had our ups and downs, often associated with blended families. And some of those troubles went beyond the children. When the closing of the company we had both worked at for a very long threw a loop in our lives, he started driving a truck, and not being home during the week. But, we survived, and the trucking company grew to the point where he couldn't drive and dispatch both, so he started dispatching from the office, and stopped driving...which meant he was home every night. That made life for us much easier. We are moving into a new transition ... Ethan graduated this year, so sometime soon, he will be moving out, and we will then become Empty Nesters. Interesting. We have made it this far with children. Surely we can make it another 25 years without children.
And I do have to say, he has been a true angel through this medical crisis. Except for one day (which was his parent's 60th wedding anniversary event, and there was lots of pressure on him to be there ... matter of fact, there were a few family members who thought maybe, just maybe, I could be there as well), he was there every single day for me. With all the different medical things they kept throwing at me, I really don't know how I would have made it emotioally, taking hit after hit. Trying to then pass on to David what they said ... welllll.... it was just better that he was there, to soak it all as well as ask questions while they were right there. He had his lap top there, and was able to keep all 13 of his drivers rolling down the road while he sat by my side. Matter of fact, having those 13 guys to keep track up and deal with was a blessing in disguise. He was really ansy on the weekends, when he didn't have to dispatch or talk to his drivers or brokers.
Even after getting out of the hospital -- except for pushing me a bit to walk more, he has been wonderful. He has taken something we have talked about for years, and finally put it into action. He started decluttering. The house is finally started to take shape, and he hasn't griped about having to do it. He accepts the fact that I am physically limited, which really surprises me. He doesn't have the best bedside manners.
After 25 years, I love him more than ever, and plan on loving him more and more and more as the years roll on.
December - This is the month that David was born in, as well as one of his daughters. David lacked 4 days of having to register for the draft when he got older. When I was in the hospital this summer, I was in the same hospital that he was in when he was a month old. His head grew larger than it was supposed to, and they found that he had a blood clot on his brain. He spent 3 months in the hospital as they dealt with it. While I was in the hsopital, he went down and had the transcripts of those 3 months mailed to us. It was interesting reading!
Determined - When I can reach that key (reference: commercial for a pill for depression) and am wound up for the day, I am determined to get better. This is not going to be a permenent way of life for me. I have ideas and plans, and as I gain more stength in my legs, and can get the pain under control, the world is mine, and nothing will stop me from doing what I want to do!
Doctors - When I was admitted to the hospital, I h ad one doctor, and we were in our local hospital, so all was fine. When they moved me to Topeka, its a bit fuzzy just what doctor or doctors I had, but I'm thinking I had just one primary doctor, and then a few other people did things to me, like a biopsy on my arm. But when they moved me to KU Med ... it is a teaching hospital. So, I had a variety of doctors. They worked as a team, and I think I had most of them figured out by the time we left there.
I had never lived through something like that, and seen so many doctors at one time. Each doctor specialized in something; and even now, doctor appointment after doctor appointment, to do a re-check to make sure I'm OK. Fortunately, things have slowed down a bit, and we can stop and breath, and not have to travel every other day.
We see the wound care doctor this Thursday, and then possibly again the next Thursday -- the doctor is saying every 2 weeks, but only because of the distance we have to travel. So, David keeps saying that its OK to go every week ... we'll just see how everything is doing this Thursday, and figure it out from there if I'll go the 26th or not. For sure though, we have appointments in Kansas City on the 31st. We have a couple of them, which is the way to do it. If we have to travel that far, we might as well have as many appointment we can for that day as we can, which is what we did that day.
Diana -- she is a wonderful lady who checks on me (via blog) and always brings a lot of sunshine to my days. She blogs under the name of "
Sunshine On My Shoulders", and I love reading her blog daily, and being a part of her life as well.
Drugs - Ahhh.... this would be the legal kind. I am not a pill taker, but I have learned to be one. I have 12 different prescriptions that I take. And some of those I have to take more than one. I have an AM/PM dispenser to help me keep everything straight. All in all, I think I take 30 pills a day, give or take a few, because my prednisone comes down a 1/2 meg every 2 weeks; and right now I am to take my Coumadine 4 mgs on day, 5 the next day, 4 the next, 5 the next. And then in 2 weeks, I go take a blood test, and depending on where my level is, they will call me and tell me what dosage I should be taking now. Isn't it fun? I am getting better. Its been awhile since I've gagged on any of my pills. This is a good thing.
Dividers - Ok. This is going to sound really silly. But, if it makes me feel good, then, its a good thing, and let it be, silly or not. I have always carried a day planner, and used it spottingly. Its just one of those things. You see the policeman going through someone's dayplanner after an accident, and finding all kinds of information. That is what I was looking for. Again, silly, I know. However, when I went in the hospital, David latched on to my day planner, and he used it quite extensively. And when we got home, with all the doctor appointments we had, I realized that I really needed to use it. Each day has a page, and I write down thoughts I want to blog about, and appointments, and like the other day, we ordered prescriptions, so I wrote the # of each one down and the name, and then checked them off when they came in, and also wrote down the price. Keeping track of "everything" really has been helpful. I had to let one company know what doctors I had seen, when, and why. It was all in my day planner, and all I had to do was go back and look.
Here's the catch though. I'm only keeping one month in my book. The rest of the year goes in a plain book that is the same side; and when we get done with a month, I take out the old month and put in the the new month. The old month, that has pages and page filled with information, it goes in the plain book, and I keep it right here by my chair (actually, the chair next to me has a pocket at the bottom of it (it was an electric reclining chair that doesn't work any more, and the pocket was to put the control thing in) -- and I keep the book there.
When David was decluttering, he was going through my books. He didn't throw my books away, but when he came across dayplanner type books or pages that were from years gone by, he threw them away. I just happened to see something he had thrown away -- a spiral planner from like 2005. Good reason to throw it away, I agree. However.... flipping through it, it had a lot of beautiful nature pictures all the way through it. So, I retrieved it out of the trash, and started to work on making dividers out the pictures. He had bought me a package of clear plastic page protectors that was the size of my book. At the time, I was only wanting 3 -- to seperate all the hospital stuff out with.
But now... I have 12 dividers, and they are all "tied to together" theme wise because I have taken them all out of that old planner book. I love the way it all goes together. I love having my planner book organized like this. My sections are:
- Calendar
- Addresses
- Personal
- Ethan
- Jason
- Prescription Information
- Misc
- DDS/SSD
- KU Med
- St Francis
- CC Hospital
- Notes (blank)
I love it. I have every phone number I can think of in the address book, from personal stuff to medical stuff, to hardware stores around town. I have our prescription information up to date, complete with Walmart's numbers, but also if one of us were to go to the hospital, all I have to do is open my book, and give them a copy. I have what we taken, the dosage, and how often.
In the different hospital sections, I have business cards, I have the bills we have recieved from them. I have note pages with notes taken of conversations we have had with them.
Our son owes us money, and he has been mowing our yard this summer to help pay off that debt. So, he has a section, and I record each time he mowes.
Ethan wanted me to keep a section in my book for him. Last year when he was in school, and I was carrying a day planner, it would have the school calendar, his locker information, pages from the teacher letting us know when all the music productions would be, or when they would be taking a trip. Important stuff like that that needed to be hung on to. But, since he's not in school this year, he really doesn't need a section in my dayplanner.
However... when he was at camp, they gave him a sheet that has everyone addresses on it. He knows he will lose it, so ... guess who has section, and what is in there. He also just newly went and got his own insurance instead of being on dad's...and he got his first bill. I know when he's out on his own, "Mommy" can't keep track of things for him. But. That bill has 7 holes punched in it, and is in Ethan's section, so we know where's its at. We have looked at the calendar, and he has decided that he needs to pay it out of this coming paycheck. So, I have written on Thursday that "Ethan needs to pay insurance bill". I will see if he remembers, and if he doesn't by Friday, then I will gently remind him that is something he needs to do. In the calendar section (where the calendar is all on one page for the month), I write his schedule as we get it. That is more for me, not him, so I know what hours he works, and try to plan suppers around it, etc. And, David is always asking when Ethan works, so the more knowable I am about it, the better.
Anyway, the dividers maybe me happy. They look good. They work. And they keep me organized. These days, ANYTHING to keep me happy and content is a good thing. It keeps me occupied keeping it organized, and it makes me feel worthwhile when I can put my finger on information in an instant. And if I can't, then that becomes my next project ... to figure out why it wasn't, and make the change to when I need that information the next time, it WILL be in my book.
Am I'm obsessive, or what?